My life changed dramatically on Mother's Day 2013. Three days later I was diagnosed with cancer from my physician. This blog was made to keep my family and friends informed to what has been happening to me the past few weeks. When I find out news from different Doctor's through all of the procedures I have had, so many of you have wanted me to text, email, call, or someway contact you. It humbles me how many of you are concerned. Sometimes I forget to contact some of you. This way, you can stay in touch with what is happening now. Please feel free to comment. I hope I have it set up so you can. If not, I will ask Emily my daughter to help me, since she helped me get this set up.

Friday, May 29, 2015

Pain seems to have worked its way through. :)

Guess what?  The leg/joint/muscle/hip pain finally went away.  I went off the ibuprofen 24/7 and had a couple of days free from pain and discomfort.  It seems to want to creep back into my body, but I zap it with more ibuprofen and then I seem to do ok again.  YAY!!!!

Friday, May 22, 2015

Great news! Not so good news...Gotta have bad with the good I guess.

Good News First........

I saw my Radiology Oncologist yesterday.  He only had good things to say about my CT scan.  All 3 of the tumors have shrunk to half their size.  One a little more, and one a little less.  The internal organs they were affecting are now moving back into their original place and things look good.  They found no impaired veins or organs due to the radiation.  In fact, the little bit of cancer I have in my liver, may have taken on a bit of the radiation and improved a bit. You see, my tumors are not attached to my liver.  They are just free floating around by the liver and pancreas so that is why it was so hard to determine what kind of cancer I had.  I had no serrosis of the liver, nor at that time, any cancer in it.  So it was such good news from the CT scan and I will be having another CT in 6 months.  Soooooo happy!!!!

Now to the cruddy part....... 

 My harmone blocker med that they are using for my cancer, is causing havoc with my body.  I really noticed on our cruise that my legs and hips were really hurting especially when I went to bed I felt it the most.  It just kept getting worse.
Last week, one morning, I tried to get out of bed and I hurt so bad, I had a terrible time getting out.  I could hardly move.  I started pain med which helped somewhat but only took the edge off.  Saturday and Sunday I spent flat on my back.  It was the most comfortable position.  Sitting hurt my hips and knees terribly.  Lying down felt better.  I hurt mostly there, but also my arms and shoulders.  My buttocks felt like I had been bucked off a horse and landed on them.  It was awful.  Even during the night, I would have a painful time moving back and forth in bed.  I didn't know what was going on.  I looked on the internet for my drug I was taking, (Tamoxifan), I called and talked to the pharmacist, whatever I could do till my doctor's office opened on Monday.  I was told that those symptoms were common for that drug and to take ibuprofen around the clock.  Try  to get ahead of the pain.  When I saw my oncologist yesterday, I told him about the pain, and he essentially said the same thing.  Take it around the clock for 3 weeks and try to get the inflammation to settle down.  Three weeks?  Seriously?  It takes that long to get the inflammation down?  I feel like an invalid.  I hobble around like a really old grandma.  REALLY OLD! (Since I shouldn't feel THAT old).

OK.  So I am whining.  I try not to whine much.  But I was told that I may continue to feel like this as long as I take this medication.  I don't even know if it is working.  I don't know what to do.  I feel like I don't want to hurt like this in my muscles and joints forever. I just cant have that quality of life from a medication is how I am feeling right now.  I hope to get the inflammation down and see if it improves.  Right now, I live from pain pill to pain pill 24/7. 

Let's not end on a sad thought.  I am so grateful for my good news.  I have been blessed so much with that.  We went to the temple last night to celebrate!!! And give thanks. 

Tuesday, May 12, 2015

Caribbean Cruise



We just spent a week in the Caribbean and had a wonderful time with a couple of our friends.  I was somewhat worried that I wouldn't be able to keep up with everyone, as my fatigue has not totally left yet.  I was concerned if I could walk from floor to floor on the ship.  I could go one floor, but the second floor I had to rest.  There was a lot of walking during the week, but everyone was great at slowing their pace. I needed to rest most days in the afternoon, but so did everybody else, so I felt OK about it.

The waiting game from CT scan to CT scan is a hard wait.  Next Tuesday, the 19th, I get the CT to see how the radiation went.  I feel it helped a lot.  I don't itch any more at all and my tumors seem to be less painful.  It will be interesting to see how much they shrunk. My radiation oncologist will see me on the 21st and tell me how it went, and then my regular oncologist will see me a few days later.