My Doctor appointment today made my head swim! I couldn't believe what she was telling me.
On the ride to her office, I told Kim that if I had one wish, (but I knew it would not come true) it would be to be able to take chemo pills again and not have to have IV chemo, which she pretty much said was my alternative when Nexivar didn't work.
Since I saw her last, she took a sample of my last years biopsy and it was sent to Phoenix. With my personal cell DNA and my personal proteins and with the biopsy from the tumor, they profiled me. The information they sent back had 2 lists. A short list of treatments that would most likely NOT work for my cancer and body makeup. Then there was a longer list of ways of treating MY cancer! I do have hepatoma cancer of the liver. I have known that over a year ago. That kind of cancer will work differently in different people.
Well, already, I liked the fact that my list of things that could possibly work for me, was longer that the ones that wouldn't work. She seemed pleased about that too.
Drumroll******** My body make-up seems to be compatible with hormone blockers to fight cancer! There are several different kinds I could try. All of them being an oral pill. No chemo at all. Just the hormone blocker. I couldn't comprehend that I was hearing this right! I just had never heard of this. She said breast cancer patients usually take this for five years after they have had breast cancer and been on chemo/radiation. I was dumbfounded. I had never heard of this. Taking a non-chemo prescription just from the pharmacy, a $10.00 90 day bottle was all I had to get. Take one a day. I kept saying to her, "Seriously? That's it?"
Like I mentioned before, if I had a wish, I hoped I could take my chemo in pill form again. Not only was I getting my wish, but it wasn't even chemo that I would be taking! This particular hormone blocker can make me feel really achy over time. The other hormone blockers on the list had harsher side effects. But this one we decided was a place to start anyway. I couldn't get the smile off my face. I couldn't believe how I had just been blessed. Hugely blessed! I HAD OPTIONS! AWESOME OPTIONS! If any of you reading this, do not believe in miracles, this was a small miracle that was for me. When Nexivar didn't work, I didn't have many options that would work well. But this scientific testing, took me to a whole new level.
We talked about how maybe this hormone blocker might not work. Then, we try another one. Keep doing this till we get to the list on my profile of chemo drugs that may work.
The best part of this all she said: "You feel good. You are not a sick cancer patient. Any chemo IV drug will potentially make you sick with toxins from side effects. Why do that when you feel just fine?" I loved her reasoning. So this hormone blocker could make me achy after time. That is it.
I thanked and thanked her. I felt so happy that I hardly could contain myself. When we got home from the pharmacy, I asked Kim to dance in the kitchen with me. We danced around like two little kids. (and he thinks he can't dance!!! )
Kim and I believe in all of your prayers. I am a recipient of being blessed because of them. I can't tell you thank you enough. My life just took another small turn for the better. Life is good!
My life changed dramatically on Mother's Day 2013. Three days later I was diagnosed with cancer from my physician. This blog was made to keep my family and friends informed to what has been happening to me the past few weeks. When I find out news from different Doctor's through all of the procedures I have had, so many of you have wanted me to text, email, call, or someway contact you. It humbles me how many of you are concerned. Sometimes I forget to contact some of you. This way, you can stay in touch with what is happening now. Please feel free to comment. I hope I have it set up so you can. If not, I will ask Emily my daughter to help me, since she helped me get this set up.
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SO SO AWESOME!!!!
ReplyDeleteCongratulations. That sounds good. My prayers are always with you. (cute little girl with bright eyes - that I used to baby sit).
ReplyDeleteI have goosebumps reading this! I have read that some cancers can be treated with hormone preparations. Thanks be to GOD and I hope this treatment works for you. I am also glad that your oncologist thinks "outside of the box" instead of putting you through such awful chemo treatment. You deserve this!!
ReplyDeleteI believe in miracles and no one deserves a miracle more than you :) Hoping for continued blessings for you Terry Lynn !
ReplyDeleteI pray this will help you. I will follow this closely as my Nexavar has stopped working for me and I am looking at clinical trials, but they involve placebo's I'm not too happy about that...... I have been off Nexavar for 10 days now.
ReplyDeleteGood luck. Mick