Tuesday, March 31, 2015
My Flag made it to the top of Killemenjaro
Well, I have been following "Radiating Hope", which is about the Tibetan flags of cancer patients making it to the top of Mount Killemenjaro in Africa. Bonnie, my nurse at the hospital where I had radiation, went on the trip to hike the flags up, and I got to follow the course on facebook. It was exciting to see the flags flying between tents, and to see them up close, and the fibers of the weave of the flags becoming frayed just like they told me they would do. I cant wait to take our personal
Tibetan flags outside for the summer and watch the fibers go to Heaven, (as they say) and bless the cancer patient. Pretty awesome, huh!
Wednesday, March 18, 2015
My flag is going to Mount Kilimanjaro March 20.
I wish there were little frowny faces that I could put on this post. Just pretend there are, OK?
I saw my radiation oncologist today. Kim and I thought we were told a month ago when I finished up the radiation that today we would know how the tumors were doing since they got zapped. Well, that didn't happen. We had our hopes up to find out if 'operation raisin' worked or not, but now we have to wait for May 21st to find out. ( More frowny faces....I hope you can see them 'cause I can.)
When I went to see this young whippersnapper today, (remember how I said he looked like he was only 12 years old), we had a talk about how the side effects had been, and still were. I asked him to show me exactly where those 3 tumors were, and he drew me a picture, and told me they were easy the size of tennis balls!! I questioned him on that and he said easily that big. THREE OF THEM!!!!!! Seriously? Was he kidding me? I had no idea that they were that big. I know I have 5 tumors. So if three are that big, then how big are the other 2? It explains to me why my stomach is distended so much and how I know I am not imagining it. I do know that one of the things one of the tumors was doing was causing havoc with swelling of my left leg and ankle, and that has quit so that tumor must be smaller. The other two are also going to be smaller. Just you wait and see. If they were tennis balls, then they aren't going to be raisins. Maybe golf balls? Shriveled up ones would be good.
Here is something fun. Remember the Tibetan flags I showed a few posts ago? Remember how they are taking my flag along with other cancer patients to the top of a mountain and hanging them for good luck? Well, they leave for Mount Kilimanjaro Friday!! The nurse who works with me when I see this doctor, is flying to some far away city where ever this tall mountain is, and she is taking the flags and will be climbing the mountain with a group of others. She will be wearing a GPS so I can follow her and follow the flags going up the mountain. Doesn't that sound fun? The Internet address to follow the flags is:
Radiatinghope.org
It has a facebook page and I am excited to follow Bonnie, my nurse, while she is climbing. Holy cow! I got to write on a flag for her today to give her inspiration, I use when I get down with my cancer. It will be a surprise to her to get these inspirational flags for her to climb with when she leaves.
That is about all I have to say. I can't wait to follow my flag with my very own name on it. Now I am writing happy faces. Can you see them?
I saw my radiation oncologist today. Kim and I thought we were told a month ago when I finished up the radiation that today we would know how the tumors were doing since they got zapped. Well, that didn't happen. We had our hopes up to find out if 'operation raisin' worked or not, but now we have to wait for May 21st to find out. ( More frowny faces....I hope you can see them 'cause I can.)
When I went to see this young whippersnapper today, (remember how I said he looked like he was only 12 years old), we had a talk about how the side effects had been, and still were. I asked him to show me exactly where those 3 tumors were, and he drew me a picture, and told me they were easy the size of tennis balls!! I questioned him on that and he said easily that big. THREE OF THEM!!!!!! Seriously? Was he kidding me? I had no idea that they were that big. I know I have 5 tumors. So if three are that big, then how big are the other 2? It explains to me why my stomach is distended so much and how I know I am not imagining it. I do know that one of the things one of the tumors was doing was causing havoc with swelling of my left leg and ankle, and that has quit so that tumor must be smaller. The other two are also going to be smaller. Just you wait and see. If they were tennis balls, then they aren't going to be raisins. Maybe golf balls? Shriveled up ones would be good.
Here is something fun. Remember the Tibetan flags I showed a few posts ago? Remember how they are taking my flag along with other cancer patients to the top of a mountain and hanging them for good luck? Well, they leave for Mount Kilimanjaro Friday!! The nurse who works with me when I see this doctor, is flying to some far away city where ever this tall mountain is, and she is taking the flags and will be climbing the mountain with a group of others. She will be wearing a GPS so I can follow her and follow the flags going up the mountain. Doesn't that sound fun? The Internet address to follow the flags is:
Radiatinghope.org
It has a facebook page and I am excited to follow Bonnie, my nurse, while she is climbing. Holy cow! I got to write on a flag for her today to give her inspiration, I use when I get down with my cancer. It will be a surprise to her to get these inspirational flags for her to climb with when she leaves.
That is about all I have to say. I can't wait to follow my flag with my very own name on it. Now I am writing happy faces. Can you see them?
Wednesday, March 11, 2015
I am a 'sick' lump on a log! That says it all.
I know I have been bad for not saying anything about my condition 'after' radiation. Well.....
1. Sick, sick, sick from nausea in the mornings and into late afternoon. I finally took Zofran, for nausea in the mornings before breakfast and that helped tons.
2. Extreme lethargy. Tiredness off the chart.
I called the radiation office and she said I could have these side effects a month. And they would dwindle each week. The nausea has dwindled, but the tiredness is still really bad. I keep thinking something else must be making me this tired, but then I think, probably not. I just need to be patient.
Why is it that anything to help cancer, that they sock it to you big time financially. Doesn't seem fair.
1. Sick, sick, sick from nausea in the mornings and into late afternoon. I finally took Zofran, for nausea in the mornings before breakfast and that helped tons.
2. Extreme lethargy. Tiredness off the chart.
I called the radiation office and she said I could have these side effects a month. And they would dwindle each week. The nausea has dwindled, but the tiredness is still really bad. I keep thinking something else must be making me this tired, but then I think, probably not. I just need to be patient.
Why is it that anything to help cancer, that they sock it to you big time financially. Doesn't seem fair.
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