I don't quite know how to feel as I write this post, as I think I am still in a little bit of shock and sadness from my Oncologist appointment today.
I had a CT scan last week, and I really have felt really good the past couple or three months. I wasn't too concerned about my appointment, but I guessed wrong unfortunately.
The interesting thing I think, is that Sunday, two days ago, I was to talk about having gratitude through my illness, in Relief Society. Ironically, my life changed a bit today, from my health I said on Sunday.
When my doctor came in, I wanted to see big smiles meaning that my cancer looked good. She had a smile, mostly I guess to see me again from 2 months ago, but then came the news.
My cancer tumors are growing. And a new one in my liver. She gave the dimensions of how much each one grew, which I cannot remember, but it seemed like somewhat bigger. Anyway, bad news that I wont be taking my chemo pills, (Nexivar) anymore. It had a chance to help me, and now lost it's luster with me and is being sent to pasture. I really didn't want to hear that I would now need to begin taking my chemotherapy intervanously. No more pill form of chemo. :( I guess that there really was a reason why I have "Lucy" (my chemo port....I named it St. Lucia. Lucy for short) after all.
Strike 1: My doctor said I most likely could lose all my hair. Only I probably wont be shaving my thinning hair this time. It just may all fall out. (She didn't say that. I did.) That was such a sad thing to hear. I just got it colored at the salon, which I hadn't been to since a year ago. It isn't long enough to style, so I just had it colored. I was sooooo longing to "very soon" not having to wear a wig or hat. But then again..... maybe I will be the exception. (Wishful thinking).
Strike 2: She also said it may make me nauseous but that they have great medicine now for that. I can take about anything but feeling nauseated!! But then again..... maybe I will be the exception. (More wishful thinking).
Strike 3: She said I may feel quite tired!!! Really? I want a nap now as it is every day by 12-1:00 pm. Oh yay...I will get up in the morning at 8 and be ready for a nap by 10 just like my 11 month old granddaughter. We can nap together!! It will not be funny if I am ready to nap with her again for her afternoon nap also!!!! Then again....I love napping.
My doctor said I could go off the Nexivar for the next two weeks, and mentally re-adjust my thinking for this next phase of cancer and then we will start my "Lucy" chemo. It could be once every three weeks. We will see.
I always knew that I was on a high wire, and that some day it wouldn't keep me up there any more. I remember when I started Nexivar, I was so scared to know what was ahead of me. I did it, have been there, done that. Now this new path I am taking is scary. What will this bring? Hopefully not another nasty horrifying rash!
But looking at the good side, I haven't been able to get in our hot tub this past year because of the Nexivar. I can relax in it again this Fall/Winter. Also, I already have Lucy, so no hospital surgery to get a port, and my blood pressure medicine may not be needed any more, since Nexivar added a lot of med's for that. That would be nice.
I know that things will be just fine. I have been teary today, but hopefully this new "path" wont be too mean to me, but if it is....BEWARE ....I WILL FIGHT BACK!
My life changed dramatically on Mother's Day 2013. Three days later I was diagnosed with cancer from my physician. This blog was made to keep my family and friends informed to what has been happening to me the past few weeks. When I find out news from different Doctor's through all of the procedures I have had, so many of you have wanted me to text, email, call, or someway contact you. It humbles me how many of you are concerned. Sometimes I forget to contact some of you. This way, you can stay in touch with what is happening now. Please feel free to comment. I hope I have it set up so you can. If not, I will ask Emily my daughter to help me, since she helped me get this set up.
Subscribe to:
Post Comments (Atom)
Naps are good. Refresher courses for mind and body. I am so sorry things have changed, a new way to arrive at the same destination...CANCER FREE ZONE!!!
ReplyDelete