My first Infusion day at Huntsman

My first time hooked up to my infusion.  For the first time, I got to use "Lucy", my port. (St. Lucia is my favorite port.  Lucy for short).   I have had her for almost 3 years and finally get to keep her busy!

Two necklaces from Shane he wanted me to be sure and wear during my infusion.  The kids birthstones on the round one.

 

 

Oh, what a week last week was.  My infusion was set for 2 different days, and then the last minute the night before, I would get a call telling me never mind.  My infusion drug hadn't come yet.  When it happened the second time, I told my nurse that a lot of planning had gone into making it possible for us to make that appointment and mentally it is hard to gear up for something unfamiliar and new and then have the rug pulled out from under me the night before.  She knew I was not happy about it.  I hung up the phone and called Kim at work and I started crying I was so upset.  They wanted me to come almost another week later.  After trying to make that schedule happen and now it was cancelled, Kim asked for the phone number and the person he was supposed to call.  He called, and he told them exactly how he felt about it all and calling the last second and how hard it was for me to keep revamping my mind and how hard it was to have that appointment canceled after trying to make it work with our schedules. He told them that for such a classy place as Huntsman, that we were not impressed so far.  WOW, DID THAT PHONE CALL CHANGE THE EVENTS OF THINGS!!!!

Within 5 minutes of Kim's phone call, I all of a sudden became their #1 priority in the infusion department, and magically........ my infusion drug arrived......in that 5 minute time!  They told me that I could come in that afternoon or tomorrow.  Really?  How did that all of a sudden work out?

I had to quickly make plans to get a ride to Huntsman the following day and Kim would meet me there after work.  I called them and they told me that I could come at any time I wanted since I was high priority.  My infusion room was a private room with a bed in it.  Most people were in "pods" as they call them in a huge room.  Here we are in a private room!!  Even the Doctor came to the infusion floor just to meet with me.  That doesn't happen on Fridays, but he did. I was treated like royalty!!!

I realize now that infusion day will last several hours, so I need to prepare for that.  They want me to have my next one in 2 weeks.

I also found out some not so good news.  My doctor told me 1 in 4 this drug will work on.  But the one its works on, it works really good.  If it doesn't work, he will try something else.  I WILL BE THE ONE!!!!!